"The day you truly start living is the day you realize that your life looks nothing like you planned, and that's okay."
I have Ehlers Danlos Syndrome, which essentially means my parents passed me some lovely genes that made the collagen, aka glue, in my body not form properly. My body is like a house constructed out of Elmer's glue and Popsicle sticks, so you can imagine the internal chaos that ensues. Kept alive through tubes and bags I tote around in a backpack, sometimes I walk, sometimes I roll, and sometimes I don't make it out of the house, but according to my track record so far, I always make it to the next day.
|And sometimes I take selfies in the hospital|
I enjoy musical theater, sarcasm, taking selfies in odd places, ice cream, petting dogs, and long drives to the hospital.
|I really enjoy ice cream|
I also love to educate and advocate for rare diseases, chronic illnesses, disability inclusion, feminism, and being an overall awesome person.
Oh, and I like to write.